JOAN’S BLOG – THURSDAY,APRIL 17, 2008 – STORIES FOR THE WASHINGTON DC FORUM

Alzheimer’s Disease has disrupted our lives, devastated our dreams , frayed our strong emotional marital bonds, and is stealing the love of our lives from us in slow, tortuous pieces.

As I wrote in last Friday’s Blog (scroll down below), next month, I and hundreds of professionals and ordinary people like us, will descend on Washington DC for 3 days to try to persuade the legislators to vote for more money to fight this dreadful disease. No one who has not lived in our shoes understands the true nature and destruction of this disease. So please help me to do our best to enlighten them.

I mentioned this briefly in the Washington Blog below, but now I am making it official. I have asked everyone in my Support Group, and I am asking you to please send me your story – how Alzheimer’s Disease has affected and changed your life and marriage. (Keep it short – one page).  Of course, I will write a page about Alzheimer’s Disease and my life – you knew I wasn’t going to keep quiet, but I would like to have a folder full to present to those representatives with whom I am meeting. As always, your privacy is a top priority, so let me know if you do not want your name used.

If I am allowed, I will also speak – loudly and clearly – using my own story, and examples from the Message Boards – to emphasize the heartbreak Alzheimer’s Disease has brought into our lives.

Most of you do not know me personally, so you have no idea how out of character it is for me to put myself in the spotlight. I prefer the quiet solitude of writing, and when I speak, I prefer it to be within my own circle of acquaintances. Somehow, this disease has propelled me to the front lines, and I guess there is no turning back.

Feedback to joan@thealzheimerspouse.com

View Printer Friendly Version

The material included on this website contains general information intended as information only. This site is not intended to provide personal, professional, medical, or psychological advice, and should not be relied upon to govern behavior in any certain or particular circumstances. The opinions in the blogs are solely those of the owner of the website. The opinions on the message boards are not necessarily endorsed by the owner of this website, and are the opinions of those persons writing the messages. All material on this web site is for demonstration and informational purposes only.

The Alzheimer Spouse LLC 2009 All Rights Reserved